Carmenate ND, Rivero PR

Language: Spanish
References: 9
Page:
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ABSTRACT

Introduction: Fatherhood means for a man an opportunity to come face to face with his own identity. Being a father is hard for many men, particularly when it implies taking charge of all the care a child requires, more so when that beloved, much-desired child has a disability or a genetic disease.
Objective: Characterize the role of the father in Cuban families with children with disabilities or genetic diseases.
Methods: An analytic descriptive study was conducted whose essential methods were document review (medical records) and a qualitative semi-structured interview. The sample was composed of 12 fathers. Information was obtained about their perceptions, assessments, personal experiences and opinions about paternal stereotypes.
Results: Fathers of children with disabilities or genetic diseases are often questioned for their denial response to the situation, which takes the shape of not accepting the severity of their child's problem or the fact that he/she is different, or delegating all the responsibility for his/her education to the mother. The marital relationship is characterized by contradictory criteria, poor communication, little time for the partner and stereotyped roles, all of which impacts the father-child relationship.
Conclusions: The intervention with fathers of children with disabilities or genetic diseases is an interdisciplinary effort aimed at raising fathers' efficacy and capability to assume the responsible care of their children for a prolonged period of time.

REFERENCES

1. Ortega P, Torres LE, Salguero A. Paternidad: periodo de cambio en la vida de los varones. Revista Psicología Científica [Internet]. 2010;11(17):120-9. Acceso: 26/12/2017. Disponible en: http://psicologiacientifica.com/paternidad-cambio-varones

2. Ortega P, Torres LE. Paternidad: niños con discapacidad. Revista Intercontinental de Psicología y Educación [Internet]. 2010;12(1):135-55. Acceso: 04/01/2018. Disponible en: http://psicologiacientifica.com/paternidad-cambio-varones

3. Nieri L. Nueva mirada hacia la construcción de la paternidad. Revista Psicología Científica [Internet]. 2012;14(10):100-6. Acceso: 05/01/2018. Disponible en: http://psicologiacientifica.com/paternidad-responsable

4. Hernández A. Las personas con discapacidad: su calidad de vida y la de su entorno. Psicología Científica [Internet]. 2004;4(4):60-5. Acceso: 26/12/2017. Disponible en http://psicologiacientifica.com/paternidad-discapacidad

5. Córdova L, Gómez J, Verdugo MA. Calidad de vida familiar en personas con discapacidad: un análisis comparativo. Universitas Psychologica [Internet]. 2008;7(2):369-83. Acceso: 28/12/2017. Disponible en http://psicologiacientifica.com/paternidad

6. Fantova F. Trabajar con las familias de las personas con discapacidades. Siglo Cero. 2000;31(6): 33-49.

7. Bronstein P, Cowan CP. Fatherhood today: Men’s changing role in the family. Ed Little. New York: Wiley; 1988.

8. Ebtinger R. Aspectos psicopatológicos de la paternidad. Confrontacio. Psychology and psychpathology. Boston: Ed Little Broown and Co.; 1990.

9. Cano A. Cambios y significados de la paternidad en tres generaciones. [Tesis de Maestría]. Colombia: Universidad Nacional de Colombia, Facultad de Ciencias Humanas; 2013.