2008, Number 1
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Rev Mex Med Fis Rehab 2008; 20 (1)
Overcharge of the primary informal caregivers of the patient with cerebral palsy at Centro de Rehabilitación Teletón
Martínez GLD, Robles RMT, Ramos del RB, Santiesteban MF, García VME, Morales EMG, García LL
Language: Spanish
References: 24
Page: 23-29
PDF size: 117.10 Kb.
ABSTRACT
Cerebral Palsy is defined as a motion disorder which affects both position and corporal movement due to a cerebral alteration during the encephalon’s development. Those patients who suffer cerebral palsy might require a caregiver, who is the person that takes care of all the activities the patient cannot perform by itself and takes responsibility for their treatment and wellbeing. The purpose of the study was to determine work perceived by the Primary Informal Family Caregiver (PIFC) of Cerebral Palsy’s patients (CP). A Sample of 102 children’s PIFC with CP was studied in the Service of Psychology of Centro de Rehabilitación Infantil Teletón (CRIT), Estado de México. The interview of the Zarit caregiver was applied with a sociodemographic questioner. The results indicated 12% of the caregivers do not reported overwork, 24% minimum overwork, 47% moderate overwork and 17% severe overwork. It was concluded that the perceived overwork might be related to the stress of taking care of a child with PCIS. The need of implementing a program for supporting the caregiver in which they are taught and strengthen the abilities to take care of a patient and themselves, and prevent their physical and psychological problems in this group.
REFERENCES
Sánchez P. Discapacidad, familia y logro escolar. Revista Iberoamericana de Educación 2006; 40: 2-10.
Organización Mundial de La Salud. Clasificación internacional de deficiencias, minusvalías y discapacidades. Madrid: Inserso; 1984.
Dzienkowski R, Smith K, Dillow K, Yucha C. Cerebral palsy: a comprehensive review. Nurse Pract 1996; 21: 45-59.
Valdez J. Enfoque integral de la Parálisis Cerebral para su diagnóstico y tratamiento, México: Prensa Médica Mexicana 1998.
Wilson H. Family care giving for a relative with Alzheimer’s dementia: coping with negative choice. Nursing Research 1989; 38(2): 94-98.
Armstrong P. Thinking it through: Women, work and caring in the new millennium. Canadian Women Studies/les cahiers de la femme 2002; 21/22, 4/1, 44-50.
Islas N, Ramos B, Aguilar M, García M. Perfil psicosocial del cuidador primario informal del paciente con EPOC. Rev Inst Nal Enf Resp Mex 2006; 19(4): 266-271.
Gonzalez F, Graz A, Pitiot D, Podestá J. Sobrecarga del cuidador de personas con lesiones neurológicas. Revista del Hospital J.M. Ramos Mejía. 2004; 9(4): 1-9. Recuperado el 6 de marzo, 2007, de http:www.ramosmejia.org.ar
López-Montero de Cruz, De Maftos Pimento CA, Kurita GP, De Oliveira AC. Caregivers of patient with chronic pain: responses to care international. Journal of Nursing Temilogios and classifications 2004; 15(1): 5-13.
Pinquart M y Sorense S. Gender diferences in caregiver stressors social resources and helth: an update mety,analysis. Journals of Gerentology 2006; 61(1): 33-45
Johnson J, Cown W. Terapia familiar de los trastornos neuroconductuales. Az: Desclée de Brouwer; 2001.
Dillehay R, Sandys M. Caregivers for alzheimer’s patients: what we are learning from research. International Journal of Aging and Human Developments 1990; 30(4): 263-285.
Montorio I, Fernández M, López A, Sánchez M. La entrevista de carga del cuidador. Utilidad y validez del concepto de carga. Anales de Psicología 1998; 14(2): 229-248.
Ramirez G, Ríos A. Niveles de sobrecarga y estilos de afrontamiento en cuidadores de familiares con discapacidad física por lesión neurológica. Interpsiquis, 2004.
Zarit M. Zarit evaluación del medio y del cuidador del paciente con demencia, Barcelona, España; Proas, 1982.
Ballesteros B, Novoa M, Muñoz L, Suárez y Garante I. Calidad de vida en familias con niños menores de dos años afectados por malformaciones congénitas. Perspectiva del cuidador principal. 2006; Univ. Psicol. Bogotá (Colombia) 5 (3), 457-473.
Brehaut J, Kohen D, Raina P, Walter S, Russell D, Swinton M et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics, 2004; 114(2): 181-192 Recuperado el 15 de julio de 2007 en www.pediatrics.org/cgi/content/full/114/2/e182.
Raina P, O´Donnell M, Schwellnus H, Rosenbaum P, King G, Brehaut J et al. Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics 2004; 4,1: 1-13.
Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter S, Russell D et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005; 115: 626-636.
Dueñas E, Martinez M., Morales B., Muñoz C., Viáfara A. y Herrera J. Síndrome del cuidador de adultos mayores discapacitados y sus implicaciones psicosociales. Colombia Med, 2006; 37 (supl 1): 31-38.
Dunst C, Trivette C. Mediating influences in social support: personal, family, and child outcomes. Am J Ment Defic 1986; 90: 403-417.
Hernández, SR., Fernández, CC., y Baptista, LUP. (2004). Metodología de la investigación. McGraw-Hill: México.
Alpuche, RV. (2007). Validación de la Entrevista de Carga del Cuidador en una Población de Cuidadores Primarios Informales. Tesis de Licenciatura, Facultad de Estudios Superiores Zaragoza, UNAM.
Cova F. La psicopatología evolutiva y los factores de riesgo y protección: el desarrollo de una mirada procesual. (2004) Revista de psicología Universidad de Chile, 8, 98-101.