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Revista Mexicana de Pediatría

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2009, Number 2

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Rev Mex Pediatr 2009; 76 (2)

Experiences in palliative care in the National Institute of Pediatrics

Garduño EA, Ham MO, Méndez VJ, Rodríguez GJ, Díaz GE, Reyes LC
Full text How to cite this article

Language: Spanish
References: 8
Page: 75-80
PDF size: 129.07 Kb.


Key words:

Palliative care, terminal disease, relief of pain.

ABSTRACT

Objective. To report the main causes related to the palliative care (PC) during the advanced phase of a disease and to mention the PC followed in the hospital. Material and methods. 200 clinical files of children with PC in the terminal phase or its illness were revised. Information was obtained regard age, sex, diagnosis, presence of pain, distress, depression and another symptoms, and the qualification by the Karnofsky scale for quality of life. Also was obtained information about the family. Results. Most of the patients had less than a year age (31.5%) and the preschool children were (29.5%). The neurological disturbance (39.5%) and cancer (34%) were the most frequent diagnosis related to PC and there leukaemia where most stricken followed by neurological tumours and genetic syndromes. Pain was the most frequent symptom (55%) principally due to solid tumors and 20% of the children had depression. In 40% of their families there was separation or divorce of parents. Conclusions. Be sides of the informations related to PC it seems than the extreme gravity of this children could be associated to the separation or divorce of parents.


REFERENCES

  1. Indicadores de calidad de vida, Órdenes de No Reanimación, En: Sánchez GMA (Ed). Ética, bioética y globalidad. 1a ed. Editorial CEP. Madrid 2006: 240, 230.

  2. Cárdenas CR. Cáncer en pediatría. Un reto social. Acta Pediatr Méx 2004; 25: 205-6.

  3. El dolor por cáncer en el niño. Directrices de la OMS y de la IASP. Cancer Pain Release, OMS 1999; 12: 1-8.

  4. Garduño EA. Cuidados paliativos en niños. Atención a pacientes con enfermedad terminal. Acta Pediatr Méx 2004; 25: 1-3.

  5. Bryant HJ, Khan SK, Hyder AA. Ética, equidrenovación de la estrategia de salud para todos de la Organización Mundial de la Salud. Foro Mundial de la Salud 1997; 18: 119-80.

  6. Gómez-Sancho M. Cuidados paliativos: Atención integral para pacientes con enfermedad terminal y a sus familiares. Acta Pediatr Méx 2004; 25: 39-47.

  7. Garduño EA, Ham MO, Méndez VJ y col. Decisiones médicas al final de la vida. Recomendaciones para la atención de pacientes en estado terminal. Acta Pediatr Méx 2006; 27: 307-16.

  8. Sanmartín MJL, Abizanda CR, Gómez RJA. Limitación del esfuerzo terapéutico en la práctica clínica. En: Gómez RJA, Abizanda CR (editores). Medicina crítica, bioética y medicina intensiva. 1a ed. Autoch, Barcelona 1999: 79-86.




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Rev Mex Pediatr. 2009;76