medigraphic.com
ISSN 1561-2961 (Print)

2011, Number 1

<< Back Next >>

Rev Cuba Enf 2011; 27 (1)

Interdisciplinary approach to quality of life and death in Oncopediatrics

LLantá AMC

Language: Spanish
References: 15
Page: 98-105
PDF size: 45.05 Kb.


ABSTRACT

Many physicians offering assistance to children and adolescents presenting cancer needed of palliative care fail trying to cure the disease and thus to extend the life and in that attempt of good intentions but lacking of professionalism and ethics become suffering sources for patients, relatives and for the working staff for maintaining a therapeutic obstinacy in most cases; in other, even though they understand the reality of a near death don't make an appropriate management of psychological , spiritual and social factors to help in a good death. Is it quality of life, is it a person ending its life or it is death quality until the last moment of its existence? , in other words, are cares for life at the end of the life and thus it is necessary an appropriate therapeutic management of the to live/to die in these age groups, which are the objective of present paper, where the features of ontogeny development make it more difficult than in the adult ones. It is a hard and difficult task, being necessary training and a real interdisciplinary work but at the same time rewarding and of a great contribution to our personal growth, because, there will be a more noble and human task that to be the company of children in the last days of existence by the life?


REFERENCES

  1. Bayés R.»Los dos objetivos de la medicina del siglo XXI». En Psicología del sufrimiento y de la muerte». Ediciones Martínez Roca, S.A. 2001; 12-20.

  2. Feinberg A. W. The care of dying patients. Ann Intern Med 1997; 126;164-165.

  3. McCarthy M. Many patients in Us hospitals die in pain. Lancet 1997; 349-258.

  4. Time for education in palliative care. The Lancet. 1997; 349- 1709.

  5. Llantá MC, Grau J, Massip C. La esperanza en el paciente oncológico: hacia una reconceptuación. Rev. Psicología de la Salud 2006; 15(2): 12-16.

  6. Cassell EJ. The nature of suffering and the goals of Medicine. Oxford: Oxford University Press, 1991.

  7. Callahan D. Death and the research imperative. The New Englan Journal of Medicine 2000; 342: 654-656.

  8. Chochvov HM. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ 2007; 335: 184 - 187.

  9. Oleske JM, Czarniecki L. Continuum of palliate care: lessons from caring for children infected with HIV-1. The Lancet 1999; 354: 1287-1290.

  10. Quesada L, Quesada M. Cuidados paliativos pediátricos: de curar a cuidar. En: Gómez Sancho M (ed) Cuidados Paliativos en niños. Las Palmas de Gran Canaria: Gafos 2007; 1: 3-16.

  11. Gómez Sancho M. Como dar bien las malas noticias. Elementos orientativos y normas generales. En: Gómez Sancho, M. (Ed.) Avances en Cuidados Paliativos. Las Palmas de Gran Canaria: GAFOS 2003.

  12. Llantá MC. Calidad de vida percibida por los niños con cáncer y reportada por los padres y médicos. Rev. Psicología y Salud 2000; 10 (1). 14-17.

  13. Sanfeliz A. La familia del enfermo infantil y adolescente. En: Die Trill M. (EDAS ediciones, S.L.) Psico-Oncología 2003; 7: 463-472.

  14. López J, Rodríguez MI. La posibilidad de encontrar sentido en el cuidado de un ser querido con cáncer. Psicooncología 2007; 2 (1):11-120.

  15. Ortíz, J. Medicina paliativa diez años después. Medicina Palitiva 1995; 2(3): 99- 101.




2020     |     www.medigraphic.com