medigraphic.com
SPANISH

Revista Cubana de Salud Pública

ISSN 1561-3127 (Electronic)
ISSN 0864-3466 (Print)
  • Contents
  • View Archive
  • Information
    • General Information        
    • Directory
  • Publish
    • Instructions for authors        
  • medigraphic.com
    • Home
    • Journals index            
    • Register / Login
  • Mi perfil

2013, Number 3

<< Back Next >>

Revista Cubana de Salud Pública 2013; 39 (3)

Family coping with epilepsy

Fabelo RJR, Iglesias MS, Louro BI, Gonzáles PS
Full text How to cite this article

Language: Spanish
References: 19
Page: 450-461
PDF size: 92.57 Kb.


Key words:

epilepsy, Psychosocial adaptation to the epilepsy, Family operation, Family confrontation to the epilepsy.

ABSTRACT

Introduction: the family confrontation to the epilepsy refers to the group behavior relatively stable that exhibits a family in connection with the presence of this illness in one of its members.
Objective: to describe the characteristics from the family coping with epilepsy. Methods: this is a descriptive investigation of traverse court in patients that suffer it assisted in the consultation multidisciplinary of Epileptology of the Psychiatric Hospital of Havana 2005-2007. For the collection of the information the Scale of Family History of Washington Psichosocial Inventory (HFS-WPSI) and the Test of evaluation of the relationships interfamily (FF-SIL) was applied to patients. We also apply the not structured interview to a key informant of the family group of the patient's coexistence.
Results: although most of the studied patients referred a family acceptable adaptation to their illness, a prevalence of non functional families was obtained. The category positive "Positive valuation of the family too much protection" constituted the qualitative fact of more relevance in the analysis of content of the Interview to a key informant of the family group.
Conclusions: the epileptic patients perceive the presence of problems in their family history, although the meaning attribution varies between a limited one and a clearing impact for the family adaptation, that which can be an indicative of the idealization of the family in the childhood. The relationships inside the family of current coexistence are perceived dysfunctional, what is expressed through the difficulties in the execution of the lists, the harmony and the communication.


REFERENCES

  1. Herranz JL. Problemática social y calidad de vida del niño epiléptico. Procedimientos para objetivarlas y para mejorarlas. Boletín de la Sociedad de Pediatría de Asturias, Cantabria, Castilla y León. 1999;39:28-33.

  2. Fabelo JR, Martín L,l Iglesias S. La aceptación de la enfermedad y la adherencia al tratamiento en pacientes con epilepsia. Rev Cubana Salud Pública. 2011 [citado 3 Mar 2013];37(1). Disponible en: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864- 34662011000100002&lng=es

  3. Fabelo JR. Psicología y Epileptología. La Habana: Editorial Ciencias Médicas; 2010.

  4. Lechtenberg R. La epilepsia y la familia. Barcelona: Editorial Herder; 1989.

  5. Fabelo JR, Iglesias S. Impacto psicosocial de la enfermedad en la calidad de vida de los pacientes con epilepsia. Revista Salud Sociedad Antofagasta. 2010;1(2):89.

  6. Aldenkamp AP. Acute cognitive effects of nonconvulsive difficult-to-detect epileptic seizures and epileptiform electroencephalographic discharges. J Child Neurol. 2001;16:119-23.

  7. Fabelo JR. Psicología de la Epilepsia. La Habana: Editorial Científico-Técnica; 2004.

  8. Iglesias S, Fabelo JR, González S. Representación social de la epilepsia en pacientes que padecen la enfermedad. Rev Hosp Psiquiátrico La Habana. 2009 [citado 3 Mar 2013];6(1). Disponible en: http://www.revistahph.sld.cu/hph0109/hph01409.html

  9. Fabelo JR, Iglesias S. Gonzáles S. Validación Cubana del Washington Psychosocial Seizures Inventory (WPSI) Rev. Hosp. Psiquiátrico de La Habana. 2010[citado 3 Mar 2013];7(1). Disponible en: http://www.revistahph.sld.cu/hph0110/hph07110.html

  10. Louro Bernal I. Campo de la salud del grupo familiar. Álvarez Sintes, editor. Medicina General Integral. La Habana: Editorial Ciencias Médicas; 2008. p. 422-4.

  11. Lazarus RS, Folkman S. Estrés y procesos cognitivos. Barcelona: Martínez Roca; 1986.

  12. González S, Dueñas J, Fabelo JR, Quintana J. Aspectos psicosociales de las epilepsias en Cuba. Rev Hospital Psiquiátrico Habana 1998;39:132-7.

  13. Hanssen-Bauer K, Heyerdahl S, Eriksson AS. Mental health problems in children and adolescents referred to a national epilepsy center. Epilepsy Behav. 2007;10(2):255-62.

  14. Freitag H, Tuxhon I. Cognitive function in preschool children after epilepsy surgery. Rationale for early intervention. Epilepsia. 2005;46(4):568-72.

  15. González S, Quintana J, Fabelo JR. Epilepsia y sociedad: una mirada hacia el siglo XXI. Rev Psiquiatría.com. 1999 [citado 1 Oct 2005];3(3). Disponible en: http://www.psiquiatria.com/psiquiatria /revista/vol3num3/

  16. Roca ME, Pérez M. Apoyo Social: su significado para la salud humana. La Habana: Editorial Félix Varela; 2000.

  17. Núñez Orozco L. Epilepsia, manual de información para pacientes y familiares. México, D. F.: GADEP; 2008.

  18. Ivanovic-Zuvic F, Alvarado L. Evaluación psicosocial de los epilépticos en Chile. Rev Chilena Neuropsiquiatría. 2001;39(4):303-15.

  19. Fernández C. Calidad de vida y epilepsia. Reflexiones prácticas para las diferentes edades de la vida. En: Rufo M, Coordinador. Cómo afrontar la epilepsia. Una guía para pacientes y familiares. Madrid: Entheos; 2005. p. 75-90.




2020     |     www.medigraphic.com

Mi perfil

C?MO CITAR (Vancouver)

Revista Cubana de Salud Pública. 2013;39