medigraphic.com
ISSN 2594-1526 (Electronic)
Antes Revista del Instituto Nacional de Enfermedades Respiratorias

 Ver anteriores al 2010

2014, Number 1

Next >>

Neumol Cir Torax 2014; 73 (1)

Sociodemographic characteristics of caregivers and the problems faced in the care of children with asthma

Bazán-Riverón GE, Rodríguez MJI, Osorio GM, Sandoval-Navarrete J

Language: Spanish
References: 36
Page: 4-11
PDF size: 218.35 Kb.


ABSTRACT

This study evaluated in caring mothers of children with poorly controlled asthma, parental perception of symptoms, family impact of asthma and socio-demographic aspects associated with trouble following medical prescriptions. Involving 110 primary caregivers (mean age = 37.6 aged, SD = 6.7) and their children with asthma (7 and 15 ages, mean = 12.3 years, SD = 2.9). The results showed that families are disadvantaged social class, and that the perception of symptoms occurs in high percentage (95.6%). The caregivers showed a strong impact on their lives at the functional and emotional level (91%). Regarding the socio-demographic are women with poor professional development, who have dropped out their formal working life. Fathers involved a little in the care of their children and caregivers received support from the women around, they frequently reported marital conflict (37%). Treatment adherence showed difficulties who lead the study conclusions to the urgent need to implement patient education constants programs, caregivers, family and the immediate surroundings of the child with asthma, and to encourage the integration of men in care of their children and communication with the healthcare team.


REFERENCES

  1. García-Calvente MM, Mateo-Rodríguez I, Eguiguren AP. El sistema informal de cuidados en clave de desigualdad. Gac Sanit 2004;18(Supl 1):132-139. Fecha de consulta: agosto, 2013. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_pdf&pid=S0213-91112004000400021&lng=es&nrm=iso&tlng=es

  2. García-Calvente MM, Mateo-Rodríguez I, Eguiguren AP. El sistema informal de cuidados en clave de desigualdad. Gac Sanit 2004;18(Supl 1):132-139. Fecha de consulta: agosto, 2013. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_pdf&pid=S0213-91112004000400021&lng=es&nrm=iso&tlng=es

  3. Brazil K, Krueguer P. Patterns of family adaptation to childhood asthma. J Pediatr Nurs 2002;17(3):167-173.

  4. Brazil K, Krueguer P. Patterns of family adaptation to childhood asthma. J Pediatr Nurs 2002;17(3):167-173.

  5. Calam R, Gregg L, Simpson B, Morris J, Woodcock A, Custovic A. Childhood asthma, behavior problems, and family functioning. J Allergy Clin Immunol 2003;112(3):499-504.

  6. Bazán-Riverón GE, Torres-Velázquez LE, Prat-Santaolaria R, Sandoval-Navarrete J, Forns-Serrallonga D. Impacto familiar del asma pediátrica. Versión mexicana del cuestionario IFABI-R. Rev Inst Nal Enf Res Méx 2009;22(2):73-83.

  7. Calam R, Gregg L, Simpson B, Morris J, Woodcock A, Custovic A. Childhood asthma, behavior problems, and family functioning. J Allergy Clin Immunol 2003;112(3):499-504.

  8. Bazán-Riverón GE, Prat-Santaolaria R, Torres-Velázquez LE, Sandoval-Navarrete J, Forns-Serrallonga D. Asma pediátrica: calidad de vida del paciente relacionada con el impacto familiar. Neumol Cir Torax 2010;69(2):75-83.

  9. Bazán-Riverón GE, Torres-Velázquez LE, Prat-Santaolaria R, Sandoval-Navarrete J, Forns-Serrallonga D. Impacto familiar del asma pediátrica. Versión mexicana del cuestionario IFABI-R. Rev Inst Nal Enf Res Méx 2009;22(2):73-83.

  10. Bazán-Riverón GE, Forns-Serrallonga D, Prat-Santaolaria R, et al. Validación del cuestionario “Percepción parental de síntomas infantiles de asma en México”. Rev Inst Nal Enf Res Méx 2008;21(3):169-180.

  11. Chen E, Hanson MD, Paterson LQ, Griffin MJ, Walker HA, Miller GE. Socioeconomic status and inflammatory processes in childhood asthma: the role of psychological stress. J Allergy Clin Immunol 2006;117(5):1014-1020.

  12. Guyatt GH, Juniper EF, Griffith LE, Feeny DH, Ferrie PJ. Children and adult perceptions of childhood asthma. Pediatrics 1997;99(2):165-168.

  13. Bazán-Riverón GE, Prat-Santaolaria R, Torres-Velázquez LE, Sandoval-Navarrete J, Forns-Serrallonga D. Asma pediátrica: calidad de vida del paciente relacionada con el impacto familiar. Neumol Cir Torax 2010;69(2):75-83.

  14. Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma (PACQLQ). Qual Life Res 1996;5(1):27-34.

  15. Gómez BRA, González YY, Morejón FJM, Travieso PR. Calidad de vida relacionada con salud en niños asmáticos y sus cuidadores. MediSur (en línea) 2005;3(3):13-26. Fecha de consulta: octubre, 2013. Disponible en: http://redalyc.org/articulo.oa?id=180019788003ISSN

  16. Bazán-Riverón GE, Forns-Serrallonga D, Prat-Santaolaria R, et al. Validación del cuestionario “Percepción parental de síntomas infantiles de asma en México”. Rev Inst Nal Enf Res Méx 2008;21(3):169-180.

  17. Vidal GA, Duffau TG, Ubilla PC. Calidad de vida en el niño asmático y su cuidador. Rev Chil Enferm Respir 2007;23(3):160-166.

  18. Global Initiative for Asthma. Global strategy for asthma management and prevention. Revised 2011, Md., National Institute of Health, National Heart, Lung and Blood Institute. Publication. Fecha de consulta: junio, 2013. Disponible en: http://www.ginasthma.org/uploads/users/files/GINA_Report2011_May4.pdf.

  19. Chen E, Hanson MD, Paterson LQ, Griffin MJ, Walker HA, Miller GE. Socioeconomic status and inflammatory processes in childhood asthma: the role of psychological stress. J Allergy Clin Immunol 2006;117(5):1014-1020.

  20. National Institutes of health, National Heart, Lung and Blood (NHLBI). Guidelines for the diagnosis and management of asthma. 2007. Fecha de consulta: Septiembre 2011. Disponible en: http://www.nhlbi.nih.gov/guidelines/asthma/asthgdln.htm

  21. Consenso Latinoamericano sobre el Asma de Difícil Control. Actualización. Drugs of Today 2008, Vol. XX, Supl. X. Fecha de consulta: Julio, 2011. Disponible en: http://www.cmdlt.edu.ve/pdfs_ciencias/consLatinAsma.pdf.

  22. Guyatt GH, Juniper EF, Griffith LE, Feeny DH, Ferrie PJ. Children and adult perceptions of childhood asthma. Pediatrics 1997;99(2):165-168.

  23. Hollingshead AB. Four factor index of social status: Unpublished manuscript. USA: Yale University, Department of Sociology; 1979, p.387-397.

  24. Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma (PACQLQ). Qual Life Res 1996;5(1):27-34.

  25. Bazán RG. Evaluación del impacto familiar del asma bronquial infantil (tesis). España: Universidad Autónoma de Barcelona, España; 2009. Disponible en: www.tdx.cat/bitstream/10803/5496/1/gebr1de1.pdf

  26. Rydström I, Dalheim-Englund AC, Segesten K, Rasmussen BH. Relations governed by uncertainty: part of life of families of a child with asthma. J Pediatr Nurs 2004;19(2):85-94.

  27. Gómez BRA, González YY, Morejón FJM, Travieso PR. Calidad de vida relacionada con salud en niños asmáticos y sus cuidadores. MediSur (en línea) 2005;3(3):13-26. Fecha de consulta: octubre, 2013. Disponible en: http://redalyc.org/articulo.oa?id=180019788003ISSN

  28. Gustafsson D, Olofsson N, Andersson F, Lindberg B, Schollin J. Effect of asthma in childhood on psychosocial problems in the family. J Psychosom Res 2002;53(6):1071-1075.

  29. Vidal GA, Duffau TG, Ubilla PC. Calidad de vida en el niño asmático y su cuidador. Rev Chil Enferm Respir 2007;23(3):160-166.

  30. Global Initiative for Asthma. Global strategy for asthma management and prevention. Revised 2011, Md., National Institute of Health, National Heart, Lung and Blood Institute. Publication. Fecha de consulta: junio, 2013. Disponible en: http://www.ginasthma.org/uploads/users/files/GINA_Report2011_May4.pdf.

  31. National Institutes of health, National Heart, Lung and Blood (NHLBI). Guidelines for the diagnosis and management of asthma. 2007. Fecha de consulta: Septiembre 2011. Disponible en: http://www.nhlbi.nih.gov/guidelines/asthma/asthgdln.htm

  32. Consenso Latinoamericano sobre el Asma de Difícil Control. Actualización. Drugs of Today 2008, Vol. XX, Supl. X. Fecha de consulta: Julio, 2011. Disponible en: http://www.cmdlt.edu.ve/pdfs_ciencias/consLatinAsma.pdf.

  33. Hollingshead AB. Four factor index of social status: Unpublished manuscript. USA: Yale University, Department of Sociology; 1979, p.387-397.

  34. Bazán RG. Evaluación del impacto familiar del asma bronquial infantil (tesis). España: Universidad Autónoma de Barcelona, España; 2009. Disponible en: www.tdx.cat/bitstream/10803/5496/1/gebr1de1.pdf

  35. Rydström I, Dalheim-Englund AC, Segesten K, Rasmussen BH. Relations governed by uncertainty: part of life of families of a child with asthma. J Pediatr Nurs 2004;19(2):85-94.

  36. Gustafsson D, Olofsson N, Andersson F, Lindberg B, Schollin J. Effect of asthma in childhood on psychosocial problems in the family. J Psychosom Res 2002;53(6):1071-1075.




2020     |     www.medigraphic.com