medigraphic.com
Instituto Nacional de Salud Pública

2015, Number 2

salud publica mex 2015; 57 (2)

Living in hemodialysis without social insurance: The voices of renal sick people and their families.

Mercado-Martínez FJ, Correa-Mauricio ME

Language: Spanish
References: 33
Page: 155-160
PDF size: 260.59 Kb.


ABSTRACT

Objective. To examine the perspectives and practices of renal sick people and their families without social insurance regarding problems faced while on dialysis treatment. Materials and methods. A qualitative research was developed in Guadalajara, Mexico. Thirty-seven renal sick people on hemodialysis and 50 relatives participated; all affiliated to Seguro Popular. Information was gathered through individual and group interviews. Directed content analysis was carried out. Results. Renal sick people and their families face multiple difficulties while on hemodialysis treatment; nevertheless, economic ones are perceived as a priority due to treatment expenses, lack of financial resources and noncoverage of kidney disease by Seguro Popular. Multiple actions are combined in a circular searching for help process to face the economic burden. Conclusion. Hemodialysis treatment is an unbearable economic burden for renal sick people and their families without social insurance. Universal access to renal therapies should be implemented urgently.


REFERENCES

  1. U.S. Renal Data System. USRDS 2013 annual data report: atlas of chronic kidney disease and end-stage renal disease in the United States. Bethesda, MD: National Institutes of Health, 2013.

  2. Schieppati A, Remuzzi G. Chronic renal disease as a public health problem: epidemiology, social, and economic implications. Kidney Int 2005;68:S7-S10.

  3. Moeller S, Gioberge S, Brown G. ESRD patients in 2001: global overview of patients, treatment modalities and development trends. Nephrol Dial Transplant 2002;17:2071-2076.

  4. Landreneau K, Lee K, Landreneau M. Quality of life in patients undergoing hemodialysis and renal transplantation - a meta-analytic review. Nephrol Nurs J 2010;37:37-45.

  5. Amato D, Álvarez-Aguilar C, Castañeda-Limones R, Rodríguez E, Ávila- Díaz M, Arreola F, et al. Prevalence of chronic kidney disease in an urban Mexican population. Kidney Int 2005;68:S11-S17.

  6. Cusumano A, González-Bedat M, García-García G, Maury-Fernández S, Lugon J, Badal HP, et al. Latin American dialysis and renal transplant registry. Clin Nephrol 2010;74:S3-S8.

  7. Bayhakki, Hatthakit U. Lived experience of patients on hemodialysis: a meta-synthesis. Nephrol Nurs J 2012;39:295-304.

  8. Calvey D, Mee L. The lived experience of the person dependent on haemodialysis. J Renal Car 2011;37:201-207.

  9. Coutinho N, Tavares M. Atenção ao paciente renal crônico, em hemodiálise, sob a ótica do usuário. Cad Saude Publica 2011;19:232-239.

  10. Mizraji R, Álvarez I, Palacios R, Fajardo C, Berrios C, Morales F, et al. Organ donation in Latin America. Transpl P 2007;39:333-335.

  11. Franco-Marina F, Tirado-Gómez L, Estrada AV, Moreno-López J, Pachecho-Domínguez R, Durán-Arenas L, et al. Una estimación indirecta de las desigualdades actuales y futuras en la frecuencia de la enfermedad renal crónica terminal en México. Salud Publica Mex 2011;53:S506-S15.

  12. Teddlie Ch, Yu F. Methods sampling: typology with examples. J Mix Methods Res 2007;1(1):77-100.

  13. Hsieh H, Shannon S. Three approaches to qualitative content analysis. Qual Health Res 2005;15:1277-1289.

  14. García-García G, Monteón-Ramos JF, Garcia-Bejarano H, Gómez- Navarro B, Hernández-Reyes I, Lomeli A, et al. Renal replacement therapy among disadvantaged populations in Mexico: a report from Jalisco Dialysis and Transplant Registry (REDTJAL). Kidney Int 2005;68:S58-S61. Artículo original 160 salud pública de méxico / vol. 57, no. 2, marzo-abril de 2015 Mercado-Martínez FJ y col.

  15. Clarkson K, Robinson K. Life on dialysis: a lived experience. Nephrol Nurs J 2010;37:29.

  16. López-Cervantes M, Rojas-Russell ME, Tirado-Gómez LL, Durán- Arenas L, Pacheco-Domínguez RL, Venado-Estrada AA, et al. Enfermedad renal crónica y su atención mediante tratamiento sustitutivo en México. México: UNAM, 2009.

  17. Just P, Riella M, Tschosik E, Noe L, Bhattacharyya S, Charro F. Economic evaluations of dialysis treatment modalities. Health Policy 2008;86:163-180.

  18. Juergensen E, Wuerth D, Finkelstein S, Juergensen P, Bekui A, Finkelstein F. Hemodialysis and peritoneal dialysis: patients’ assessment of their satisfaction with therapy and the impact of the therapy on their lives. Clin J Am Soc Nephro 2006;1:1191-1196.

  19. Gregory D, Way C, Hutchinson T, Barrett B, Parfrey P. Patients’ perceptions of their experiences with ESRD and hemodialysis treatment. Qual Health Res 1998;8:762-783.

  20. Moist L, Bragg-Gresham J, Pisoni R, Saran R, Akiba T, Jacobson S, et al. Time travel to dialysis as a predictor of health-related quality of life, adherence, and mortality: the dialysis outcomes and practice patterns study (DOPPS). Am J Kidney Dis 2008;51:641-650.

  21. Unruh M, Evans I, Fink N, Powe N, Meyer K. Skipped treatments, markers of nutritional nonadherence, and survival among incident hemodialysis patients. Am J Kidney Dis 2005;46:1107-1116.

  22. Olowu W. Renal failure in nigerian children: factor limiting access to dialysis. Pediatr Nephrol 2003;18:1249-1254.

  23. Hirachan P, Kharel T, Shah D, Ball J. Renal replacement therapy in Nepal. Hemodial Int 2010;14:383-386.

  24. Yu H, Petrini M. The HRQoL of Chinese patients undergoing haemodialysis. J Clin Nurs 2010;19:658-665.

  25. Barsoum R. Overview: End-stage renal disease in the developing world. Artif Organs 2002;26:737-746.

  26. Kierans C, Padilla-Altamira C, García-García G, Ibarra-Hernández M, Mercado-Martínez F. When health systems are barriers to health care: challenges faced by uninsured Mexican kidney patients. Plos One [serie en internet] 2013;8:1-7 [consultado el 20 de agosto de 2014]. Disponible en: http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal. pone.0054380#pone-0054380-t005

  27. Mercado-Martínez F, Hernández-Ibarra E, Ascencio-Mera C, Díaz-Medina B, Padilla-Altamira C, Kierans C. Viviendo con trasplante renal, sin protección social en salud: ¿qué dicen los enfermos sobre las dificultades económicas que enfrentan y sus efectos? Cad Saude Publica 2014;30:2092-2100.

  28. Durán-Arenas L, Ávila-Palomares P, Zendejas-Villanueva R, Vargas-Ruiz M, Tirado-Gómez L, López-Cervantes M. Costos directos de la hemodiálisis en unidades públicas y privadas. Salud Publica Mex 2011;53:516-524.

  29. Ranasinghe P, Perera Y, Makarim M, Wijesinghe A, Wanigasuriya K. The costs in provision of haemodialysis in a developing country: a multi-centered study. BMC Nephrol 2011;12:42.

  30. Ayé M, Champagne F, Contandriopoulos A. Economic role of solidarity and social capital in accessing modern health care services in the Ivory Coast. Soc Sci Med 2002;55:1929-1946.

  31. Mehrdad R. Health system in Iran. JMAJ 2009;52:69-73.

  32. Mahdavi-Mazdeh M, Zamani M, Zamyadi M, Rajolani H, Tajbakhsh K, Rouchi AH, et al. Hemodialysis cost in Tehran, Iran. Hemodial Int 2008;12:492-498.

  33. Aran D, Laca H. Sistema de salud de Uruguay. Salud Publica Mex 2013;53 supl 2:S265-S274.




2020     |     www.medigraphic.com