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2015, Number 3

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Rev Mex Pediatr 2015; 82 (3)

Functional assessment of patients with cerebral palsy by the abilities index

Barrón-Garza F, Riquelme-Heras HM, Ibarra-Rodríguez MC, Castillo-de Onofre A, Covarrubias-Contreras LB, Vázquez-Rodríguez DA

Language: Spanish
References: 18
Page: 87-92
PDF size: 576.08 Kb.


ABSTRACT

Objectives: Describe the distribution and frequency of disorders in the functional abilities of children and adolescents with cerebral palsy (CP). Propose interventions that contribute to improve their quality of life. Material and methods: Cross-sectional study of 1,976 Mexican patients treated in a specialized institution, evaluated by a multidisciplinary team with the “abilities index” at the beginning of each academic cycle, for 8 consecutive years. Results: 86% had motor disorders, 79% socio-adaptive and 42% those related to physical health. Functional profile showed the presence of multiple disorders and high ratings (range 3-5) indicating a great limitation in 6 of the skills. Only in the audition area, in which an increase was 32% in the seventh year χ2 = 20.7 p ‹ 0.05, was observed a significant change in the frequency of functional disorders over time. Conclusions: In the population of patients with CP, disorders in the socioadaptive skills are almost as common as motor disorders. The functional profile of the group showed multiple disorders being moderate to deep in 6 of 9 studied skills. It is desirable that care for this population programmes provide a comprehensive approach, including disorders of functional skills and not only their motor problems, thus enriching the lives of children and adolescents with CP and their families.


REFERENCES

  1. Hurtado IL. La parálisis cerebral. Actualización del concepto, diagnóstico y tratamiento. Pediatría Integral. 2007; 11: 687-698.

  2. Sánchez-Ventura JG. Parálisis cerebral: ¿qué es?, ¿qué no es? introducción. Rev Pediatr Aten Primaria. 2007; 9(Supl. 1): 13-15.

  3. Rosembaum P, Paneth N, Leviton A, Goldstein M, Bax M. Definition and classification document. In: Baxter P (ed). The definition and classification of cerebral palsy. Dev Med Child Neurol. 2007; 49 (Suppl. 2): 8-14.

  4. Bjornson KF, McLaughlin JF. The measurement of health-related quality of life (HRQL) in children with cerebral palsy. Eur J Neurol. 2001; 8(Suppl. 5): 183-193.

  5. Robaina-Castellanos GR, Riesgo-Rodríguez SC, Robaina-Castellanos MS. Evaluación diagnóstica del niño con parálisis cerebral. Rev Cubana Pediatr. 2007; 79(2): 0-0.

  6. Østensjø S, Brogren-Carlberg E, Vøllestad NK. Everyday functioning in young children with cerebral palsy: functional skills, caregiver assistance, and modifications of the environment. Dev Med Child Neurol. 2003; 45(9): 603-612.

  7. Simeonsson RJ, Bailey DB. The abilities index. Chapel Hill Frank Porter Graham Child Development Center. 1991.

  8. Buysse V, Smith TM, Bailey DB, Simeonsson RJ. Consumer validation of an index characterizing the functional abilities of young children with disabilities. J Early Interv. 1993; 17(3): 224-238.

  9. Buysse V, Bailey DB, Smith TM, Simeonsson RJ. The relationship between child characteristics and placement in specialized versus inclusive early childhood programs. Top Early Child Spec Educ. 1994; 14(4): 419-435.

  10. Simeonsson RJ, Chen J, Hu Y. Functional assessment of Chinese children with the ABILITIES index. Disabil Rehabil. 1995; 17(7): 400-410.

  11. Krigger KW. Cerebral palsy: an overview. Am Fam Physician. 2006; 73(1): 91-100.

  12. Bueno Mª L, G-G. El concepto Halliwick como base de la hidroterapia infantil. Fisioterapia. 2002; 24(3): 160-164.

  13. Humphreys G, Pountney T. The development and implementation of an integrated care pathway for 24-hour postural management: a study of the views of staff and carers. Physiotherapy. 2006; 92(4): 233-239.

  14. Moreno GJA, Barrón GF, Garza SJF. Resultados de la liberación funcional total en pacientes con parálisis cerebral infantil. Rev Mex Ortop Ped [Internet]. 1997 [citado 2 de julio de 2015]; 1 (2). Disponible en: http://new.medigraphic.com/cgi-bin/resumenMain.cgi?IDARTICULO=18479&IDPUBLICACION=1889&IDREVISTA=54

  15. Rosada-Ayala JI. La competencia comunicativa en personas que presentan parálisis cerebral. ReiDoCrea. 2012 [citado 2 de julio de 2015]; 1: 158-163. Disponible en: http://digibug.ugr.es/handle/10481/21996

  16. Escobar R, Núñez A, Henao A, Cerda J, Cox A, Miranda M. Caracterización psicométrica, motora y funcional en niños con parálisis cerebral. Rev Chil Pediatría. 2011; 82(5): 388-394.

  17. Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005; 115(6): e626-636.

  18. Majnemer A, Shevell M, Law M, Birnbaum R, Chilingaryan G, Rosenbaum P et al. Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Dev Med Child Neurol. 2008; 50(10): 751-758.




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