medigraphic.com
Instituto Nacional de Salud Pública

2017, Number 4

<< Back Next >>

salud publica mex 2017; 59 (4)

New considerations on the health of the persons with intellectual developmental disorders

Folch-Mas A, Cortés-Ruiz MJ, Salvador-Carulla L, Kazah-Soneyra N, Irazábal-Giménez M, Muñoz-Lorente S, Tamarit-Cuadrado J, Martínez-Leal R

Language: Spanish
References: 55
Page: 454-461
PDF size: 212.21 Kb.


ABSTRACT

Recent literature indicates that people with Disorders of Intellectual Development (DID) experience health disparities in the pathologies that they present, and a worst access to health care. However, current evidence-based knowledge is still sparse outside the Anglo-Saxon countries. The POMONA-I and POMONA-II European projects aimed to collect information on the health status of people with DID in Europe. The POMONA-ESP project in Spain is meant to collect health information in a wide and representative sample of persons with DID. Also, there are studies that claim for the need of specialized services for people with DID at the public health system. There are also studies about the current state of the education and training about DID for students within the health sector. In this paper we review the latest evidences about the health of the persons with DID and we present the main research activities and care initiatives about this issue.


REFERENCES

  1. Salvador-Carulla L, Reed G, Vaez-Azizi L, Cooper SA, Martínez-Leal R, Bertelli M, et al. Intellectual developmental disorders: towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD-11. World Psychiatry 2011;10(3):175-180. https://doi. org/10.1002/j.2051-5545.2011.tb00045.x

  2. Harris JC. New terminology for mental retardation in DSM-5 and ICD- 11. Curr Opin Psychiatry 2013;26(3):260-262. https://doi.org/10.1097/ YCO.0b013e32835fd6fb

  3. American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 5th ed. Arlington, VA: American Psychiatric Publishing, 2013.

  4. Martínez-Leal R, Salvador-Carulla L, Gutiérrez-Colosía MR, Nadal M, Novell-Alsina R, Martorell A, et al. La salud en personas con discapacidad intelectual en Espa-a: estudio europeo POMONA-II. Revista de Neurologia 2011;53(7):406-414.

  5. Scholte-Frans A. European Manifesto: basic standards of healthcare for people with intellectual disabilities. Salud Publica Méx 2008; 50(2):273-276. https://doi.org/10.1590/S0036-36342008000800021

  6. McCarthy J, O’Hara J. Ill-health and intellectual disabilities. Curr Opin Psychiatry 2011;24(5):382-386. https://doi.org/10.1097/ YCO.0b013e3283476b21

  7. Maulik PK, Mascarenhas MN, Mathers CD, Dua T, Saxena S. Prevalence of intellectual disability: A meta-analysis of population-based studies. Research in Developmental Disabilities 2011;32(2):419-436. https://doi. org/10.1016/j.ridd.2010.12.018

  8. Olesen J, Gustavsson A, Svensson M, Wittchen HU, Jönsson B. The economic cost of brain disorders in Europe. Eur J Neurol 2012;19(1):155-162. https://doi.org/10.1111/j.1468-1331.2011.03590.x

  9. Strydom A, Romeo R, Perez-Achiaga N, Livingston G, King M, Knapp M, et al. Service use and cost of mental disorder in older adults with intellectual disability. Br J Psychiatry 2010;196(2):133-138. https://doi.org/10.1192/ bjp.bp.108.060939

  10. Salvador-Carulla L, Saxena S. Intellectual disability: between disability and clinical nosology. Lancet 2009;374(9704):1798-1799. https://doi. org/10.1016/S0140-6736(09)62034-1

  11. Ali A, Hassiotis A. Illness in people with intellectual disabilities. BMJ 2008;336:570-571. https://doi.org/10.1136/bmj.39490.543137.80

  12. Thompson R, Linehan C, Glynn M, Kerr MP. A qualitative study of carers’ and professionals’ views on the management of people with intellectual disability and epilepsy: a neglected population. Epilepsy Behav 2013;28(3):379-385. https://doi.org/10.1016/j.yebeh.2013.05.024

  13. US Department of Health and Human Services. Closing the gap: A national blueprint to improve the health of persons with mental retardation. Report of the Surgeon General’s Conference on Health Disparities and Mental Retardation. Washington (DC): US Department of Health and Human Services, 2002.

  14. MENCAP. Treat me Right! MENCAP. London; 2004 [consultado el 2 de enero de 2015]. Disponible en: https://www.mencap.org.uk/sites/default/ files/documents/2008-03/treat_me_right.pdf

  15. MENCAP. Death by Indifference. MENCAP. London; 2007 [consultado el 2 de enero de 2015]. Disponible en: https://www.mencap.org.uk/sites/ default/files/documents/2008-03/DBIreport.pdf

  16. Krahn GL, Hammond L, Turner A. A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev 2006;12(1):70-82. https://doi.org/10.1002/ mrdd.20098

  17. O’Hara J, McCarthy J, Bouras N. Intellectual disability and Ill Health. A review of the evidence. Cambridge: Cambridge University Press, 2010. https://doi.org/10.1017/CBO9780511770715

  18. Thomas KC, Ellis AR. Patterns of healthcare use and employment among people with disabilities. Disabil Health J 2013;6(2):133-140. https:// doi.org/10.1016/j.dhjo.2012.11.008

  19. Jansen DE, Krol B, Groothoff JW, Post D. People with intellectual disability and their health problems: a review of comparative studies. J Intellect Disabil Res 2004;48(Pt 2):93-102. https://doi.org/10.1111/j.1365- 2788.2004.00483.x

  20. Patterson BJ, Doucette WR, Lindgren SD, Chrischilles EA. Living with disability: Patterns of health problems and symptom mediation of health consequences. Disabil Health J 2012;5(3):151-158. https://doi. org/10.1016/j.dhjo.2012.03.001

  21. Veenstra MY, Walsh PN, van Schrojenstein Lantman-de Valk HM, Haveman MJ, Linehan C, Kerr MP, et al. Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities. J Clin Epidemiol 2010;63(10):1091-100. https://doi.org/10.1016/j.jclinepi. 2009.12.001

  22. Horovitz M, Matson JL, Sipes M, Shoemaker M, Belva B, Bamburg JW. Incidence and trends in psychopathology symptoms over time in adults with severe to profound intellectual disability. Res Dev Disabil 2011;32(2):685-692. https://doi.org/10.1016/j.ridd.2010.11.013

  23. Matson JL, Williams LW. The making of a field: The development of comorbid psychopathology research for persons with intellectual disabilities and autism. Res Dev Disabil 2014;35(1):234-238. https://doi.org/10.1016/j. ridd.2013.09.043

  24. Yoo JH, Valdovinos MG, Schroeder SR. The epidemiology of psychopathology in people with intellectual disability: A forty-year review. In R Hodapp, (Ed.). International Review of Research in Intellectual and Developmental Disabilities. New York: Elsevier, 2012:31-56. https://doi. org/10.1016/b978-0-12-394284-5.00002-4

  25. Bergström H, Hagströmer M, Hagberg J, Elinder LS. A multi-component universal intervention to improve diet and physical activity among adults with intellectual disabilities in community residences: a cluster randomised controlled trial. Res Dev Disabil 2013;34(11):3847-3857. https://doi. org/10.1016/j.ridd.2013.07.019

  26. Casey AF, Rasmussen R. Reduction measures and percent body fat in individuals with intellectual disabilities: a scoping review. Disabil Health J 2013;6(1):2-7. https://doi.org/10.1016/j.dhjo.2012.09.002

  27. Rimmer JH, Yamaki K. Obesity and intellectual disability. Ment Retard Dev Disabil Res Rev 2006;12(1):22-27. https://doi.org/10.1002/ mrdd.20091

  28. Rimmer JH, Wang E, Yamaki K, Davis B. Documenting Disparities in Obesity and Disability. Focus Technical Brief 24. Chicago: National Institute on Disability and Rehabilitation Research, 2010 [consultado el 2 de junio de 2015]. Disponible en: http://ktdrr.org/ktlibrary/articles_pubs/ncddrwork/ focus/focus24/Focus24.pdf

  29. Carroll-Chapman SL, Wu LT. Substance abuse among individuals with intellectual disabilities. Res Dev Disabil 2012; 33(4):1147-1156. https://doi. org/10.1016/j.ridd.2012.02.009

  30. Servais L. Sexual health care in persons with intellectual disabilities. Ment Retard Dev Disabil Res Rev 2006;12(1):48-56. https://doi. org/10.1002/mrdd.20093

  31. Anders PL, Davis EL. Oral health of patients with intellectual disabilities: a systematic review. Spec Care Dentist 2010;30(3):110-117. https:// doi.org/10.1111/j.1754-4505.2010.00136.x

  32. O’Keefe E. Oral health of patients with intellectual disabilities. Evid Based Dent 2010;11(3):81. https://doi.org/10.1038/sj.ebd.6400739

  33. Kancherla V, Van Naarden-Braun K, Yeargin-Allsopp M. Dental care among young adults with intellectual disability. Res Dev Disabil 2013; 34(5):1630-1641. https://doi.org/10.1016/j.ridd.2013.02.006

  34. Innes A, McCabe L, Watchman K. Caring for older people with an intellectual disability: a systematic review. Maturitas 2012;72(4):286-295. https://doi.org/10.1016/j.maturitas.2012.05.008

  35. Strydom A, Chan T, King M, Hassiotis A, Livingston G. Incidence of dementia in older adults with intellectual disabilities. Res Dev Disabil 2013;34(6):1881-1885. https://doi.org/10.1016/j.ridd.2013.02.021

  36. Torr J, Davis R. Ageing and mental health problems in people with intellectual disability.. Curr Opin Psychiatry 2007;20(5):467-471. https:// doi.org/10.1097/YCO.0b013e328278520d

  37. Haveman M, Perry J, Salvador-Carulla L, Walsh PN, Kerr M, Van Schrojenstein Lantman-de Valk H, et al. Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. J Intellect Dev Disabil 2011;36(1):49-60. https://doi.org/10.3109/13668250 .2010.549464

  38. Zeilinger EL, Stiehl KA, Weber G. A systematic review on assessment instruments for dementia in persons with intellectual disabilities. Res Dev Disabil 2013;34(11):3962-3977. https://doi.org/10.1016/j.ridd.2013.08.013

  39. Salvador-Carulla L, García-Gutierrez JC. Healthcare in intellectual disabilities: Europe outside the UK. Psychiatry 2009;8(11):453-456. https:// doi.org/10.1016/j.mppsy.2009.07.008

  40. Feldman MA, Bosett J, Collet C, Burnham-Riosa P. Where are persons with intellectual disabilities in medical research? A survey of published clinical trials. J Intellect Disabil Res 2014;58(9):800-809. https://doi. org/10.1111/jir.12091

  41. Lezzoni LI, Long-Bellil LM. Training physicians about caring for persons with disabilities: “Nothing about us without us!”. Disabil Health J 2012;5(3):136-139. https://doi.org/10.1016/j.dhjo.2012.03.003

  42. Linehan C, Walsh PN, Van Schrojenstein Lantman-de Valk HMJ, Kerr MP, Dawson F. Are people with intellectual disabilities represented in European public health surveys? J Appl Res Intellect Disabil 2009;22:409-420. https://doi.org/10.1111/j.1468-3148.2009.00521.x

  43. Mizen LA, Macfie ML, Findlay L, Cooper SA, Melville CA. Clinical guidelines contribute to the health inequities experienced by individuals with intellectual disabilities. Implement Sci 2012;11(7):42. https://doi. org/10.1186/1748-5908-7-42

  44. Lennox N, Ware R, Bain C, Taylor-Gomez M, Cooper SA. Effects of health screening for adults with intellectual disability: a pooled analysis. Br J Gen Pract 2011;61(584):193-196. https://doi.org/10.3399/ bjgp11X561186

  45. Naaldenberg J, Kuijken N, van Dooren K, van Schrojenstein Lantman de Valk H. Topics, methods and challenges in health promotion for people with intellectual disabilities: a structured review of literature. Res Dev Disabil 2013;34(12):4534-4545. https://doi.org/10.1016/j.ridd.2013.09.029

  46. Walsh PN, Kerr M, van Schrojenstein Lantman-De Valk H. Health indicators for people with intellectual disabilities: a european perspective. Eur J Public Health 2003;13(3 Suppl):47-50. https://doi.org/10.1093/eurpub/13. suppl_1.47

  47. van Schrojenstein Lantman-de Valk H, Linehan C, Kerr M, Noonan- Walsh P. Developing health indicators for people with intellectual disabilities. The method of the Pomona project. J Intellect Disabil Res 2007;51(Pt. 6):427-434. https://doi.org/10.1111/j.1365-2788.2006.00890.x

  48. Pomona I Project. Health inequality and health disparity among people with intellectual disability [Internet]. Final report 2. Dublin; 2004 [consultado el 2 de enero de 2015]. Disponible en: http://www.pomonaproject. org/2_health_inequality.pdf

  49. Pomona I Project. Health indicators for people with intellectual disability. Final report 3. Dublin; 2004 [consultado el 2 de enero de 2015]. Disponible en: http://www.pomonaproject.org/3_health_indicators.pdf

  50. Pomona I Project. Pomona Results. Final report 5. Dublin; 2004 [consultado el 2 de enero de 2015]. Disponible en: http://www.pomonaproject. org/5_results.pdf

  51. Walsh PN, Hall L, Ryan D. Health indicators for people with intellectual disability: using an indicator set. POMONA II Final Report. Dublin; 2008 [consultado el 2 de enero de 2015]. Disponible en: http://www.pomonaproject. org/action1_2004_frep_14_en.pdf

  52. Perry J, Linehan C, Kerr M, Salvador-Carulla L, Zeilinger E, Weber G, et al. The P15 - a multinational assessment battery for collecting data on health indicators relevant to adults with intellectual disabilities. J Intellect Disabil Res 2010;54(11):981-991. https://doi.org/10.1111/j.1365- 2788.2010.01322.x

  53. Martínez-Leal R, Salvador-Carulla L, Linehan C, Walsh P, Weber G, Van Hove G, et al. The impact of living arrangements and deinstitutionalisation in the health status of persons with intellectual disability in Europe. J Intellect Disabil Res 2011;55(9):858-872. https://doi.org/10.1111/j.1365- 2788.2011.01439.x

  54. Salvador-Carulla L, Martinez-Leal R, Poole M, Salinas-Perez JA, Tamarit J, Garcia-Ibanez J, et al. Perspectives: the mental health care gap in intellectual disabilities in Spain: impact analysis and knowledge-to-action plan. J Ment Health Policy Econ 2013;16(3):131-141.

  55. Salvador-Carulla L, Martínez-Leal R, Heyler C, Alvarez-Galvez J, Veenstra MY, García-Ibá-ez J, et al. Training on intellectual disability in health sciences: the European perspective. Int J Dev Disabil 2015;61(1):20-31. https://doi.org/10.1179/2047387713Y.0000000027




2020     |     www.medigraphic.com