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>Journals >Acta Pediátrica de México >Year 2009, Issue 1


March-Mifsut A, Gómez-Macal GM
Preparing for death and celebrating life. Emotional support for families with children with heart disease in Mexico
Acta Pediatr Mex 2009; 30 (1)

Language: Español
References: 15
Page: 31-34
PDF: 32.21 Kb.


Full text




ABSTRACT

From the time of birth to the moment of death, there are several critical moments human beings has to face in order to grow internally and go on living. When families are confronted with the diagnosis of congenital heart disease, they realize that life expectation and plans for the future of their child are uncertain until the results of the surgical or medical treatment are known.
At the Instituto Nacional de Pediatría, congenital heart surgery has advance considerably in the last 7 years. However we still have to deal with many environmental factors that block postoperative recovery. Due to the fact that our hospital is government founded, most of our families have no medical insurance or social security and they live in extreme poverty with all the consequences of this lifestyle. In all of our complex heart surgeries we accompany the family from the moment they arrive to the hospital until the child goes back to school. Along the way we deal with the possibility of death several times, and this creates a special bond between us. This includes being at their side when their child dies, offer individual counseling and be a part of a grief support group afterwards. On the other hand, when the child survives we gladly stay with them to celebrate life in a meaningful way.


Key words: Emotional support, death preparation, thanatology, congenital heart disease.


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>Journals >Acta Pediátrica de México >Year 2009, Issue 1
 

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