Acta Pediátrica de México

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>Journals >Acta Pediátrica de México >Year 2009, Issue 1

March-Mifsut A, Gómez-Macal GM
Preparing for death and celebrating life. Emotional support for families with children with heart disease in Mexico
Acta Pediatr Mex 2009; 30 (1)

Language: Español
References: 15
Page: 31-34
PDF: 32.21 Kb.

Full text


From the time of birth to the moment of death, there are several critical moments human beings has to face in order to grow internally and go on living. When families are confronted with the diagnosis of congenital heart disease, they realize that life expectation and plans for the future of their child are uncertain until the results of the surgical or medical treatment are known.
At the Instituto Nacional de Pediatría, congenital heart surgery has advance considerably in the last 7 years. However we still have to deal with many environmental factors that block postoperative recovery. Due to the fact that our hospital is government founded, most of our families have no medical insurance or social security and they live in extreme poverty with all the consequences of this lifestyle. In all of our complex heart surgeries we accompany the family from the moment they arrive to the hospital until the child goes back to school. Along the way we deal with the possibility of death several times, and this creates a special bond between us. This includes being at their side when their child dies, offer individual counseling and be a part of a grief support group afterwards. On the other hand, when the child survives we gladly stay with them to celebrate life in a meaningful way.

Key words: Emotional support, death preparation, thanatology, congenital heart disease.


  1. Argueta J. Día de muertos. Crónicas y leyendas mexicanas. Ciudad de México, 2007.

  2. Zarauz H. La fi esta de la muerte. Consejo Nacional para la Cultura y las Artes. Ciudad de México, 2004.

  3. Lopez A. Religión y magia en el ciclo de las fi estas aztecas. INAH, Ciudad de México , 1969.

  4. Justus R, Wyles D, Wilson J, Rode J, Walther V, Lim-Sulit N. Preparing children and families for surgery: Mount Sinai’s multidisciplinary perspective. Pediatr Nurs 2006;32(1):35-43.

  5. Thompson ML. Information seeking coping and anxiety in school-age children anticipating surgery. Child Health Care 1994;23(2)87-97.

  6. Hagglof B. Psychological reaction by children of various ages to hospital care and invasive procedures. Acta Paediatr 1999;88(431)72-8.

  7. Kain Zn, Caramico LA, Mayes LC, Genevro JL, Bornstein MH. Preoperative preparation programs in children: A comparative examination. Anesth Analg 1998;87(6)1249-55.

  8. La Montagne LL. Children´s coping with surgery: A process oriented perspective. J Pediatr Nurs 2000;15(5):307-12.

  9. Goldberg S, Simmons R, Newman J, Campbell K, Fowley R. Congenital heart disease, parental stress and infant-mother relationships. Behavioral Pediatrics 1991;119(4):661-6.

  10. Forrester D, Murphy P, Price D, Monaghan J. Critical care family needs: Nurse-family member confederate pairs. Heart and Lung 1990;19(6): 655-61.

  11. Billings A, Keeley A, et al. Merging cultures: Palliative care specialists in the medical intensive care unit. Crit Care Med 2006;34(Suppl 11):S388-S393.

  12. Sanders C. How to survive the loss of a child. Filling the emptiness and rebuilding your life. California: Prima Pub; 1998.

  13. Cyrulnik B. El amor que nos cura. Barcelona: Gedisa; 2004.

  14. Cyrulnik B. Los patitos feos. Barcelona: Gedisa; 2002.

  15. Poletti R, Dobbs B. La resiliencia. El arte de resurgir a la vida. México: Lumen; 2006.

>Journals >Acta Pediátrica de México >Year 2009, Issue 1

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