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Instituto Nacional de Salud Pública

2008, Número S2

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salud publica mex 2008; 50 (S2)


Puntos de vista de familiares de adolescentes y adultos mexicanos con discapacidad intelectual acerca de su autonomía

Allen-Leigh B, Katz G, Rangel-Eudave G, Lazcano-Ponce E

Idioma: Ingles.
Referencias bibliográficas: 31
Paginas: 213-221
Archivo PDF: 168.15 Kb.


RESUMEN

Este estudio busca describir las maneras en que jóvenes y adultos mexicanos con discapacidad intelectual ejercen la autonomía. Dos grupos focales se llevaron a cabo con familiares de personas con discapacidad intelectual quienes han recibido capacitación para la vida independiente en el Centro de Capacitación y Desarrollo Integral, CADI. Se analizaron las transcripciones con códigos definidos a priori, basados en un marco teórico preexistente sobre autonomía y calidad de vida entre personas con discapacidad intelectual. Las personas con discapacidad intelectual ejercen autonomía en diversos ámbitos: personal, social, sexual y económico. La autonomía empoderada se da cuando se le enseña a la persona las habilidades necesarias y luego se le permite actuar con base en sus propios intereses. La autonomía negociada implica ser guiado en las acciones, recibir explicaciones y negociar las decisiones; constituye un proceso de aprendizaje. La autonomía interpretada es el tipo más limitado que se describe, e implica protección, interpretación y puede involucrar la toma de decisiones por otros. Estos tipos de autonomía constituyen un fenómeno complejo y las divisiones entre ellas son difusas.


REFERENCIAS (EN ESTE ARTÍCULO)

  1. Fillary R, Pernice R. Social inclusion in workplaces where people with intellectual disabilities are employed: Implications for supported employment professionals. Int J Rehabil Res 2006;29(1):31-6.

  2. Holt G, Costello H, Bouras N, Diareme S, Hillery J, Moss S, Rodriguez-Blazquez C, Salvador L, Tsiantis J, Weber G, Dimitrakaki C. BIOMEDMEROPE project: Service provision for adults with intellectual disability: A European comparison. J Intellect Disabil Res.2000;44 ( Pt 6):685-96.

  3. O’Hara J. Standards and quality measures for services for people with intellectual disabilities. Curr Opin Psychiatry 2006;19(5):497-501.

  4. Wehmeyer ML, Bolding N. Enhanced self-determination of adults with intellectual disability as an outcome of moving to community-based work or living environments. J Intellect Disabil Res 2001;45(Pt 5):371-83.

  5. Heller T, Miller AB, Factor A. Autonomy in residential facilities and community functioning of adults with mental retardation. Ment Retard 1999;37(6):449-57.

  6. Young L. Community and cluster centre residential services for adults with intellectual disability: Long-term results from an Australian-matched sample. J Intellect Disabil Res 2006;50(Pt 6):419-31.

  7. Lifshitz H, Merrick J. Ageing and intellectual disability in Israel: a study to compare community residence with living at home. Health Soc Care Community 2003;11(4):364-71.

  8. Felce D, Emerson E. Living with support in a home in the community: Predictors of behavioral development and household and community activity. Ment Retard Dev Disabil Res Rev 2001;7(2):75-83.

  9. Heller T, Miller AB, Hsieh K. Eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities. Ment Retard 2002;40(5):366-78.

  10. Zhang D, Wehmeyr ML, Chen LJ. Parent and teacher engagement in fostering self-determination of students with disabilities: A comparison between the United States and the Republic of China. Remedial and Special Education 2005;26(1):55-64.

  11. Xu J, Wang M, Xiang Y, Hu X. Quality of life for people with intellectual disabilities in China: A cross-culture perspectives study. J Intellect Disabil Res 2005;49(10):745-9.

  12. Lachapelle Y, Wehmeyer ML, Haelewyck MC, Courbois Y, Keith KD, Schalock R, Verdugo MA, Walsh PN. The relationship between quality of life and self-determination: An international study. J Intellect Disabil Res 2005;49(Pt 10):740-4.

  13. Duvdevany I, Ben-Zur H, Ambar A. Self-determination and mental retardation: Is there an association with living arrangement and lifestyle satisfaction? Ment Retard 2002;40(5):379-89.

  14. van Hooren RH, Widdershoven GAM, van den Borne HW, Curfs LMG. Autonomy and intellectual disability: The case of prevention of obesity in Prader-Willi syndrome. J Intellect Disabil Res 2002;46(Pt 7):560-8.

  15. Hatton C, Emerson E, Robertson J, Gregory N, Kessissoglou S, Walsh PN. The Resident Choice Scale: A measure to assess opportunities for self-determination in residential settings. J Intellect Disabil Res 2004;48 (Pt 2):103-13.

  16. Emerson E, Bromley J. The form and function of challenging behaviours. J Intellect Disabil Res 1995;39 ( Pt 5):388-98.

  17. Allen B, Katz G, Rangel Euduve G, Lazcano Ponce E. “CADI-Un modelo educativo para adolescentes y adultos mexicanos con discapacidad intelectual: su contribución a la inclusión social con calidad de vida.” Conferencia Magistral. 4º Simposio Internacional: Avances recientes en educación. Acambay, Estado de México, 14-15 March, 2007.

  18. Allen B, Katz G, Rangel-Eudave G, Lazcano-Ponce E. “Evaluation of the quality of service delivery by the Integral Training and Development Center (CADI) in Mexico City, Mexico: quality of life and independent living.” International Summit for the Alliance on Social Inclusion-AAMR Québec. Oral presentation. Montreal, Canada, 3-5 May, 2006.

  19. Strauss A, Corbin J. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Thousand Oaks, CA: Sage, 1990.

  20. Bernard HR. Social research methods: Qualitative and quantitative approaches. Thousand Oaks, CA: Sage, 2000.

  21. Bramston P, Chipuer H, Pretty G. Conceptual principles of quality of life: An empirical exploration. J Intellect Disabil Res 2005;49(Pt 10):728-33.

  22. Bertelli M, Brown I. Quality of life for people with intellectual disabilities. Current Opinion in Psychiatry 2006;19:(5)508-513.

  23. van Hooren RH, Widdershoven GA, Candel MJ, van den Borne BW, Curfs LM. Between control and freedom in the care for persons with Prader-Willi syndrome: An analysis of preferred interventions by caregivers. Patient Educ Couns 2006;63(1-2):223-31.

  24. van Hooren RH, Widdershoven GA, van der Bruggen H, van den Borne HW, Curfs LM. Values in the care for young persons with Prader-Willi syndrome: Creating a meaningful life together. Child Care Health Dev. 2005;31(3):309-19.

  25. Whitehead T. Autonomy and competency--Self-determination in the lives of adults with developmental disabilities. Bioethics Forum 1999;15(2):19-30.

  26. Stancliffe RJ. Living with support in the community: Predictors of choice and self-determination. Ment Retard Dev Disabil Res Rev 2001;7(2):91-8.

  27. Gutiérrez-Aguilar R. Desandar el laberinto: Introspección en la feminidad contemporánea. La Paz, Bolivia: Muela del Diablo Editores, 1999.

  28. Duvdevany I, Arar E. Leisure activities, friendships, and quality of life of persons with intellectual disability: Foster homes vs community residential settings. Int J Rehabil Res 2004 Dec;27(4):289-96.

  29. Eastgate G. Sex, consent and intellectual disability. Aust Fam Physician 2005;34(3):163-6.

  30. Servais L. Sexual health care in persons with intellectual disabilities. Ment Retard Dev Disabil Res Rev 2006;12(1):48-56.

  31. Robertson J, Emerson E, Hatton C, Gregory N, Kessissoglou S, Hallam A, Walsh PN. Environmental opportunities and supports for exercising self-determination in community-based residential settings. Res Dev Disabil 2001;22(6):487-502.




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