Urdaneta-Carruyo E, Rodríguez-Sánchez YA, Dorta VJC, Urdaneta-Contreras AV

Language: Spanish
References: 16
Page: 75-79
PDF size: 139.35 Kb.

ABSTRACT

Disabled children troubled with serious neurological and psychological handicaps need constant medical attention do to their helplessness. This fact poses ethical-social dilemmas in the sanitary organization, such as: where should these children be taken care of? Is the hospital the most adequate place to take care of them? In Pediatrics these facts are more complex than those observed in adult patients in equal situation and sometimes reach intense dramatism. In this study, a description of the clinical condition of eight children is analyzed. These eight children (5 boys and 3 girls; four of them are teenagers) were abandoned at the University Hospital of The Andes. They all suffer neurological disabilities due to diverse pathologies. Their ages ranged from 15 days of age to 12 years when entering to the Institution and their time of reclusion from 5 to 18 years. These children have not been able to be inserted in society due to their families total neglected, the almost null possibility of been adopted and their neuro-psychic incapacity. Their lives pass by in an hospital which is what they are offered in substitution for a home, which they will never have.

REFERENCES

1. García CC. Enfermedades crónicas: Aspectos generales de la problemática pediátrico-social. En: C García Caballero, editor. Pediatría Social. Madrid: Díaz de Santos; 1995: 289-302.

2. Stein RE, Jessop DJ, Riessman CK. Health care services received by children with chronic illness. Am J Dis Child 1983; 137(3): 225-30.

3. Roldan AS, Calvente F, Morales F, Durán de Vargas LE, González MA. Hospital: Hogar permanente para algunos niños. Vox Paediatrica 1996; 4(1): 47-50.

4. Coutiño LB. Implicaciones bioéticas en el niño discapacitado. En: Garduño-Espinosa A (Comp). Bioética. McGraw-Hill Interamericana Editores, S.A. de C.V. 2001: 45-56.

5. Urdaneta-Carruyo E, Sulbarán-Maldonado HA. The hospital which is the permanent home for children with chronic and degenerative diseases. Second International Conference on Child & Adolescent Mental Health. Kuala Lumpur, Malaysia. June, 2000: 6-10.

6. Fernández OMA. El impacto de la enfermedad en la familia. Rev Fac Med UNAM 2004; 47(6): 251-4.

7. Figueroa-Duarte AS, Campbell-Araujo AS. El impacto social de las enfermedades crónicas y las discapacidades en la familia. Bol Clin Hosp Infant Edo Son 2004; 21: 63-7.

8. Nihei K, Funato M. Quality of life of children with chronic neurological diseases: introductory remarks. No To Hattatsu 1996 28(3): 199-201.

9. Naito H. Transition of patients with chronic neurological diseases from hospital to home. No To Hattatsu 1996; 28(3): 211-3.

10. Merkens MJ. A pediatric chronic illness transition unit. Child Health Care 1990; 19(1): 4-9.

11. Cologna M, Zeni F, Bobbi C. Home care of children with chronic diseases: cooperation between hospital and home care workers. Riv Inferm 1996; 15(2): 74-81.

12. Develay A, Fontaine A, Guiot M, Lecourt A, Rodríguez M, Brodin M. Analysis of pediatric home care services of the Assistance Publique—Hopitaux de Paris. Arch Pediatr 1996; 3(1): 28-34.

13. Donaghy B, Wright AJ. New home care choices for children with special needs. Caring 1993; 12(12): 47-50.

14. Stein R. A home care program for children with chronic illness. Child Health Care 1983; 12(2): 90-2.

15. Jaudes PK, Diamond LJ. Neglect of chronically ill children. Am J Dis Child 1986; 140(7): 655-8.

16. Bock RH, Lierman C, Ahmann E, Weinstock N, Alweis M, Mitchell F, Ortiz M. There’s no place like home. Child Health Care 1983; 12(2): 93-6.