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Boletín Clínico Hospital Infantil del Estado de Sonora

Boletín Clínico de la Asociación Médica del Hospital Infantil del Estado de Sonora
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2010, Number 1

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Bol Clin Hosp Infant Edo Son 2010; 27 (1)

“Crisis de Ausencias desde la Perspectiva de los Niños y Adolescentes que la Padecen”

Figueroa-Duarte AS, Campbell-Araujo OA
Full text How to cite this article

Language: Spanish
References: 11
Page: 22-29
PDF size: 554.00 Kb.


Key words:

Illness experience, absence seizures, children perspective, voices of children, children rights.

ABSTRACT

In this work are presented results of a local investigation, in which children and adolescents with absence seizures were invited to participate, with the objective to know from their perspective how they live their illness in their everyday. The model in where it is to rely on is the experience of illness; this approach integrates the mind-body dichotomy within the social context, acknowledging that people are more than physiological entities; overcomes the limitations inherent in the medical model and ensures that patients are treated as persons and not as objects. The fundamental of this work is that provided the opportunity to participants to express free and creatively about their emotions, difficulties, point of view, etc. who scarcely are take in consideration. This because the children have been regarded as the passive recipients of adults´ protection and care; have been the invisible and voiceless objects of concern, and not understood as competent, autonomous persons who have a point of view .We utilized for this work a methodology (novel, in which we are starting to research in our country). It employs humanities (in this case drawing and narrative) in neurology pediatric area, to explore one of the disorders of more frequency in this subspecialty. We conclude that like child health professionals interested in to promote the children development and well-being, as well as to achieve an eager patient compliance, is essential that the practitioners in their clinical practice to get more involved to obtain knowledge not only of the disease also of the illness experience. It will extend their knowledge and it will improve the attention process too, creating better conditions of childhood in the future.


REFERENCES

  1. Morse J, Johnson J. Understanding the Illness Experience. En: The illness experience. Dimensions of suffering. London Sage, 1991.

  2. Conrad P. The Experience of Illness: Recent and New Directions. En: Research in The Sociology of Health Care. Vol 6, 1987.

  3. Kleinman A. The Illness Narratives: Suffering, healing and the human condition. New York: Basic Books, 1988.

  4. Kleinman A, Eisenberg L, Good B. Culture, Illness, and Care. Clinical Lessons from Anthropologic and Cross-Cultural Research. Annals of Internal Medicine 1978, 88: 251-8.

  5. Lewis A, Parsons S, Smith P. Understanding of epilepsy by children with, or without, epilepsy: Birmigham: University of Birminham.2007.

  6. Figueroa-Duarte, AS. Epilepsia en niños y adolescentes. Un estudio desde la perspectiva de la epidemiología sociocultural. Tesis para optar por el grado de Doctora en Ciencias Sociales. El Colegio de Sonora, 2008.

  7. Smith A, Taylor N. Introduction. En Children´s Voices. Research, Policy and Practice. Pearson Education, Nueva Zelanda, 2000.

  8. Kerslake Hendricks A. Good dads, bad dads, funny dads and sad Dads: children´s perspectives of fathers. En Children´s Voices. Research, Policy and Practice. Pearson Education, Nueva Zelanda, 2000.

  9. Figueroa-Duarte A.S, Campbell-Araujo O A. Boletín Contactando, sección Talleres para niños. Disponible en: http://www.boletincontactando.com/talleresninos.htm).

  10. Campbell-Araujo OA. y Figueroa-Duarte, AS. “Crisis de ausencias. Análisis clínico de 22 casos”. Bol Clin Hosp Infant Edo Son 2000; 17:87-94. Disponible en: http://www.boletincontactando.com/pdfs/ausencias-art-2009.pdf.

  11. Figueroa-Duarte A S. De expedientes y narrativas: mirada médica y experiencia del padecimiento en niños y adolescentes con epilepsia en Hermosillo. Región y Sociedad. Vol. 20 no. esp 2 México, 2008. Disponible en: http://www.scielo.org.mx/scielo.php?script=sci_arttext&pid=S187039252008000400006&lng=en&nrm=iso&tlng=es




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Bol Clin Hosp Infant Edo Son. 2010;27