medigraphic.com
ISSN 1405-8790 (Print)

2015, Number 1

<< Back Next >>

Rev Mex Med Fis Rehab 2015; 27 (1)

Quality of life improvement in families with cerebral palsy and psychoeducational intervention children

Barrón-Garza F, Garza-Elizondo T, Vázquez-Rodríguez D

Language: Spanish
References: 24
Page: 12-16
PDF size: 184.49 Kb.


ABSTRACT

Objectives: Analyze whether quality of life for families of children with CP improves with psycho educational intervention offered to their mothers, and compare these results for functional diagnostics and level of gross motor function classification system in their children. Material and methods: Cohort study, observational analytical, comparison of means, sample of 45 mothers; statistical analysis with SPSS 20. Scale of family quality of Life was administered at baseline subsequently offered psycho educative intervention; and finally, after the intervention the scale was applied again to them. Results: After the intervention importance (p = 0.05), and satisfaction (p = 0.05) in family interaction were increased; parental role satisfaction (p = 0.04), family resources (p = 0.01) and supports for people with disabilities. (p = 0.01), with no difference for functional diagnosis or motor function classification of their children. Discussion: Mothers of children with CP have shown poor results in their assessment of quality of life, compared with mothers of children with other disorders; this study shows that the psycho educative intervention improves aspects of family interaction; parental role, family resources and supports for people with disabilities; this approach can enrich the lives of families of children with cerebral palsy


REFERENCES

  1. Benítez YG, Soto EG. Las familias ante la discapacidad. Rev Electrónica Psicol Iztacala. 2012; 15 (3): 1023.

  2. Poston D, Turnbull A, Park J, Mannan H, Marquis J, Wang M. Calidad de vida familiar: un estudio cualitativo. 2013 [citado 30 de marzo de 2014]; Recuperado a partir de: http://riberdis.cedd.net/handle/11181/3739

  3. Córdoba-Andrade L, Gómez-Benito J, Verdugo-Alonso MA. Calidad de vida familiar en personas con discapacidad: un análisis comparativo. Univ Psychol. 2008; 7 (2): 369-383.

  4. Camacho-Salas A et al. Parálisis cerebral: conceptos y registro de base poblacional. Rev Neurol. 2007; 45 (8): 503-508.

  5. González PL, Rendón PM, del Río PB, Macario PF, Valdés ME, Enríquez PM et al. Carga percibida del cuidador primario del paciente con parálisis cerebral infantil severa del Centro de Rehabilitación Infantil Teletón. Rev Mex Med Física Rehabil. 2008; 20: 23-29.

  6. Roca-Roger M, Úbeda-Bonet I, García-Viñets L, Caja-López C. Padres que cuidan a sus hijos con plurisdiscapacidad: estudio cualitativo sobre el cuidado y sus consecuencias. Siglo Cero Rev Esp Sobre Discapac Intelect [Internet]. 2012 [citado 30 de marzo de 2014]; 43 (244): 49-61. Recuperado a partir de: http://diposit.ub.edu/dspace/handle/2445/44170

  7. Baltor MRR, Dupas G. Experiencias de familias de niños con parálisis cerebral en contexto de vulnerabilidad social. 2013 [citado 30 de marzo de 2014]; Recuperado a partir de: http://www.scielo.br/pdf/rlae/v21n4/es_0104-1169-rlae-21-04-0956.pdf

  8. Huerta CM. Familias de pacientes con parálisis cerebral severa: sus indicadores de calidad de vida. Investig Cienc. 2012; (55): 33-41.

  9. López CRM, del Río BR, Rendón MTR, González LDM, López CGF. Carga y dependencia en cuidadores primarios informales de pacientes con parálisis cerebral infantil severa. Psicol Salud [Internet]. 2013 [citado 30 de marzo de 2014]; 22 (2). Recuperado a partir de: http://revistas.uv.mx/index.php/psicysalud/article/view/551

  10. Gila MJ, Sánchez RO, Gómez-Caro S, Oropesa AS, Morena JC, Moreno FJ. El rol de cuidador de personas dependientes y sus repercusiones sobre su calidad de vida y su salud. Rev Clin Med Fam. 2009; 2 (7): 332-334.

  11. Verdugo-Alonso MA, Córdoba-Andrade L, Gómez J. Adaptación y validación al español de la escala de calidad de vida familiar (ECVF). Siglo Cero [Internet]. 2012 [citado 30 de marzo de 2014]; Recuperado a partir de: http://riberdis.cedd.net/handle/11181/3137

  12. Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair. 2005; 19 (3): 232-237.

  13. Corbella MBI. Calidad de vida familiar. La familia como apoyo a la persona con parálisis cerebral. Interv Psicosoc. 2005; 14 (3): 325-341.

  14. Al-Gamal E. Quality of life and anticipatory grieving among parents living with a child with cerebral palsy. Int J Nurs Pract. 2013; 19 (3): 288-294.

  15. Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005; 115 (6): e626-636.

  16. Romeo DM, Cioni M, Distefano A, Battaglia LR, Costanzo L, Ricci D et al. Quality of life in parents of children with cerebral palsy: is it influenced by the child’s behaviour? Neuropediatrics. 2010; 41 (03): 121-126.

  17. Khayatzadeh MM, Rostami HR, Amirsalari S, Karimloo M. Investigation of quality of life in mothers of children with cerebral palsy in Iran: association with socio-economic status, marital satisfaction and fatigue. Disabil Rehabil. 2013; 35 (10): 803-808.

  18. Corbella MB. Estrés y afrontamiento en familias con hijos afectados de parálisis cerebral. Dep Pers Eval Trat Psicológicos INICO Univ Salamanca [Internet] [citado 17 de mayo de 2014]. Recuperado a partir de: http://inico.usal.es/documentos/estresPC.pdf

  19. Basaran A, Karadavut KI, Uneri SO, Balbaloglu O, Atasoy N. The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. Eur J Phys Rehabil Med. 2013; 49 (6): 815-822.

  20. Tekinarslan IC. A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder. Psychol Rep. 2013; 112 (1): 266-287.

  21. Unsal-Delialioglu S, Kaya K, Ozel S, Gorgulu G. Depression in mothers of children with cerebral palsy and related factors in Turkey: a controlled study. Int J Rehabil Res. 2009; 32 (3): 199-204.

  22. Serrano-Patten AC, Ortiz-Céspedes L, Crespo-de Quesada JM. Estrategias de afrontamiento en familias de niños de 0-4 años con parálisis cerebral. Rev Electrónica Psicol Iztacala [Internet]. 2012 [citado 30 de marzo de 2014]; 15 (3). Recuperado a partir de: http://www.ojs.unam.mx/index.php/repi/article/view/33631

  23. Fernández-Alcántara M, García-Caro MP, Berrocal-Castellano M, Benítez-Feliponi Á, Robles-Vizcaíno C, Laynez-Rubio C. Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo. Anales del Sistema Sanitario de Navarra [Internet]. 2013 [citado 23 de agosto de 2014]; 9-20. Recuperado a partir de: http://recyt.fecyt.es/index.php/ASSN/article/view/18165

  24. Toledo-Enríquez KT et al. Análisis del síndrome del cuidador primario en madres de niños y niñas de 0 a 2 años con parálisis cerebral de la Fundación Jonathan. 2012 [citado 26 de agosto de 2014]; Recuperado a partir de: http://dspace.ups.edu.ec/handle/123456789/3449




2020     |     www.medigraphic.com