Márquez GIF, Grau AJ, Infante POE, Lacaba RY, Oliva HI

Language: Spanish
References: 14
Page:
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ABSTRACT

Introduction: The increas of chronic non transmitable diseases (ECNT) on elders requiere in not a few quantity of cases of palliative care.
Obejectives: To create the primary validation of three scales disigned in other context to train the Cuban care givers of oncological-geriatric patients.
Methods: A development study was carried out during the period December, 2013–June, 2014. It had three stages: the translation made by experts of the Scales of Training Needs for the Care Giver, Considered Competency for the Care and the Inventory of Family Needs, followed by the context of validation in two rounds done by experts’ criteria to achieve the adjustment of the scales. Finally, a study with the Cuban version was done. The study was done with 40 care givers of oncological-geriatric patients of Boyeros health area.
Results: The values of Cronbach alpha internal consistence level were of 0,891 for the Scales of Training Needs for the Care Giver, 0,7761 for the Competency for the Care and the Inventory of Family Needs and 0,9149 for the Inventory of Family Needs. The care givers predominated with the necessity for the care training with self-confident to develop its roll and satisfied with their needs identified as important.
Conclusions: The preliminary results of these scales show that they are effective and reliable for their application for similar populations as the one studied.

REFERENCES

1. Reyes MC, Grau J, Chacón M. Cuidados paliativos en pacientes con cáncer avanzado: 120 preguntas y respuestas. La Habana: Editorial Ciencias Médicas; 2009.

2. Hudson P, Lobb E, Baded M, Thomas Kr, Zordan R, Quinn K et al. Psycho-Educational Group Intervention for Family Caregivers of Hospitalized Palliative Care Patients: Pilot Study. Journal of Palliative Medicine. 2012 [consultado Dic 2013]; 15(3). Disponible en: http://online.liebertpub.com/

3. Henriksson A, Andershed B, Benzein E, Årestedt Kr. Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness. Palliat Med 2012; 26: 930. Originally published online: 9 September 2011[consultado Dic 2013]. Disponible: http://pmj.sagepub.com/

4. Archbold P, Stewart B. Family Caregiving Inventory. Portland: Oregon Health Sciences University; 1996.

5. Grau J, Chacón M, Reyes MC. Guía de cuidados para familiares de enfermos crónicos avanzados. La Habana: Editorial Ciencias Médicas; 2012.

6. Zwicker A. Preparedness for Caregiving Scale. New York University College of Nursing. 2010 [consultado Dic 2013]; 28. Disponible en: http://consultgerirn.org/uploads/File/trythis/try_this_28.pdf

7. Pearlin L, Mullan S, Semple S, Skuff M. Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist. 1990; 30(5): 583-93.

8. Kristjanson LJ, Atwood J, Degner LF. Validity and reliability of the Family Inventory of Needs (FIN): Measuring the care needs of families of advanced cancer patients. J Nurs Meas. 1995 [consultado Dic 2013]; 3(2):109–26. Disponible en: http://www.ingentaconnect.com/

9. Hudson P, Thomas T, Quinn K. Family meetings in palliative care: are they effective? Palliative Medicine. 2009 [consultado Dic 2013]; 23: 150-7. Disponible en: http://pmj.sagepub.com

10. Manzini JL. Declaración de Helsinki: principios éticos para la investigación médica sobre sujetos humanos. Análisis de la 5ª reforma, aprobada por la Asamblea General de la Asociación Médica Mundial en octubre del año 2000, en Edimburgo, respecto del texto aprobado en Somerset West (Sudáfrica) en octubre de 1996. Acceso 11 de febrero de 2015. Disponible en: http://www.scielo.cl/scielo.php

11. Escobar J, Cuervo A. Validez de contenido y juicios de expertos: una aproximación a su utilización. Avances en medición [revista en internet] 2008. [acceso febrero de 2014]; 6(1): 27-36. Disponible en: htpp://www.dialnet.uniroja.es/info/ayuda/índice

12. Martínez F. Cuidados en familia. Orientaciones para el cuidado en el hogar de enfermos crónicos y personas con discapacidad. La Habana: Editorial de la Mujer; 2012.

13. Caqueo-Urízar A, Segovia-Lagos P, Urrutia-Urrutia U, Miranda C, Navarro E. Impacto de la relación de ayuda de cuidadores primarios en la calidad de vida de pacientes con cáncer avanzado. Revista Psicooncología 2013; 10 (1): 95-108.

14. Rodríguez MA. Cómo afronto el cáncer. Santiago de Cuba: Editorial Oriente; 2013.