Espinosa-Maldonado EG, Torres-González R, Gibraltar-Conde A

Language: Spanish
References: 10
Page: 136-141
PDF size: 404.11 Kb.

ABSTRACT

Background: Hemophilia is a hereditary coagulation disorder linked to the X chromosome, caused by the deficiency or dysfunction of factor VIII in hemophilia type A and factor IX in hemophilia type B. Health-related quality of life focuses on the evaluation by the individual of the limitations that, in different areas, have determined the development of a disease and/or accident.
Objective: To determine the health-related quality of life in adolescents and adults with hemophilia treated in a rehabilitation unit.
Material and Method: A cross-sectional, descriptive and observational study in adolescents and adults with hemophilia who attended the North Physical Medicine and Rehabilitation Unit, Mexico City was done from March to June 2019. The SF-12 questionnaire was applied and clinical and sociodemographic data were collected.
Results: Fourty-one men participated with an average age of 37 years with a range of 14 to 68 years. The scores of the SF-12 questionnaire showed that these patients had a mean health-related quality of life, being good in their mental component and poor in the physical.
Conclusions: Health-related quality of life in the participants of this study was categorized globally as mean.

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