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2020, Number 3

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Cuba y Salud 2020; 15 (3)

Amyotrophic Lateral Sclerosis, efficacy of its multidisciplinary management Institute of Neurology and Neurosurgery. 2005-2017

Lara FGE, Scull TM, Zaldivar VT, Arias MA, Gutierrez GJ
Full text How to cite this article

Language: Spanish
References: 26
Page: 12-18
PDF size: 766.72 Kb.


Key words:

multidisciplinary care, palliative care, motor neuron disease, amyotrophic lateral sclerosis.

ABSTRACT

Objective: to evaluate the effectiveness of the multidisciplinary care process for patients with Amyotrophic Lateral Sclerosis treated at the Institute of Neurology and Neurosurgery in the period 2005- 2017.
Method: an evaluation of the effectiveness of the multidisciplinary care process was carried out for patients with Amyotrophic Lateral Sclerosis treated at the Institute of Neurology and Neurosurgery, through an intervention from 2012 on quality of care and health records; it was divided into two stages. In the period 2005-2011, 72 patients were included in the study and in 2012-2017 (75). Statistical processing was carried out through the comparison of the means of two non-parametric samples, the Mann Whitney U test, and the comparison of proportions by the Z proportions comparison test, with a reliability of 95% and p <0.05.
Results: during the period 2012-2017 a decrease in diagnostic latency was obtained for bulbar form in 3.24 months; 5.4 more months of survival and there was no place of death without specifying and inclusion of Amyotrophic Lateral Sclerosis as a cause of death in 96% of the death certificates, all statistically significant.
Conclusions: the multidisciplinary care process for patients with Amyotrophic Lateral Sclerosis treated at the Institute of Neurology and Neurosurgery during the period 2005-2017 was evaluated as effective.


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Cuba y Salud. 2020;15