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Asociación Colombiana de Otorrinolaringología y Cirugía de Cabeza y cuello, Maxilofacial y Estética Facial (ACORL)

2025, Number 1

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Acta de Otorrinolaringología CCC 2025; 53 (1)

Sociodemographic profile and quality of life evaluation in patients with cleft nasal deformities: Insights from a colombian coast reference center

Pulido-Arias EA, Bolaños-López, C; Henao-Rincón MA, Morales-Valdés LJ

Language: Spanish
References: 25
Page: 51-60
PDF size: 269.76 Kb.


ABSTRACT

Introduction: Cleft nose, associated with cleft lip with or without cleft palate, is the most common craniofacial congenital defect, occurring in 1:500 to 1:2000 individuals worldwide. This condition may have significant functional and psychosocial implications, yet it is often underestimated in most patients. Methods: An analytical longitudinal prospective observational study was designed to characterize the sociodemographic profile and assess the quality of life in 17 patients with cleft nose who the Otorhinolaryngology Department of the University Hospital of the Caribbean followed. Patient-reported scales NOSE, SCHNOS, and CLEFT-Q were utilized to evaluate nasal obstruction, nasal function, and health-related quality of life. Results: Most patients perceive an acceptable quality of life regarding nasal obstruction and respiratory function, although significant concerns regarding nasal aesthetics were observed. Patients reported a variety of psychological, social, and functional difficulties associated with their condition. Conclusion: This study underscores the complexity of cleft nose and its impact on patients’ quality of life. It provides a solid foundation for comprehensive preoperative assessment and highlights the need for multidisciplinary approaches to addressing these patients’ medical and psychosocial concerns.


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