Fraga GD, Rojas BIA, Jiménez TI, Martín RMR, García CME

Language: Spanish
References: 9
Page: 43-48
PDF size: 273.69 Kb.

ABSTRACT

Evaluation of effectiveness of genetic counseling and satisfaction by the received medical genetic services of patients and relatives, allow to design new strategies for increasing quality of health services. We proposed an evaluation of such effectiveness and satisfaction in Abreus municipality, Cienfuegos province, in 2004-2007. One hundred nine patients or their relatives were interviewed in 50 selected families, based in a no probabilistic criterion, by a structured questionnaire and the definition of adequate variables. The most of interviewed persons (92,5%) show to have good awareness about the problem which motived assistance to medical genetic services; while 95,4% qualified the taken decisions as very rational. Moreover, 97,2% qualified as good the ability for facing the problem and the repercussion for long time about taken decisions. Satisfaction of received health services was qualified as good by 97,2% of interviewed persons. Outcomes reflect the expected possitive impact in peoples to get improvement of genetic counseling and medical genetics services in general, which were introduce with the creation of the municipal center for development of Community Genetics in Abreus, Cienfuegos province, in 2003.

REFERENCES

1. Marcheco Teruel B. La Genética en la Salud Pública. Rev Cubana Genet Comunit. 2007;1(1):5-6.

2. González Lucas N, Lantigua Cruz A. Diseño de proyectos de investigación en la Maestría en Asesoramiento Genético: Su impacto en la Medicina Comunitaria. Rev Cubana Genet Comunit. 2007;1(2):58-62.

3. Lantigua Cruz A. Introducción a la Genética Médica. La Habana: Editorial Ciencias Médicas; 2004.

4. Pinto Escalante D, Ceballos Quintal JM, Castillo Zapata I, López Ávila MTJ. Fundamentos y actualidades del asesoramiento genético. Rev Biomed Mérida [en línea] 2001[fecha de acceso 12 de mayo de 2008];12(3). URL disponible en: http://scielomx. bvs.br/scielo.php?pid=S0188-493X2001000300006&script=sci_arttext

5. Mueller R F, Young I D. Emery´s. Genética Médica. 10ª ed. La Habana: Editorial Ciencias Médicas; 2001.

6. Martín Ruiz MR, Casas Buchillón J. Conocimientos sobre Sicklemia y riesgo genético en portadores sanos que habían recibido asesoramiento genético. Rev Habanera Ciencias Médicas [en línea] 2006 [fecha de acceso 12 de mayo de 2008];5(4). URL disponible en: http://www.ucmh.sld.cu/rhab/vol5_num4/rhcm09406.htm

7. Martín Ruiz MR, Duany Frómeta E, Domínguez Mena M, Alfonso Díaz K, Santana Hernández ME, Viñales Pedraza MI. Anemia Falciforme: Conocimientos y percepción actual del riesgo en jóvenes detectados al nacimiento como portadores sanos. Rev Cubana Genet Comunit. 2008;2(3):44-51.

8. Rojas I. Efectividad del asesoramiento genético en parejas de alto riesgo para la Anemia por Hematíes Falciformes. Rev Cubana Ginecol-Obstet. 1989;15(4):285-94.

9. Vega Lima H. Imparto social del asesoramiento genético en la población del municipio San Antonio del Sur. Rev Cubana Genet Comunit. 2006; Suplemento Especial:p122.